High Five

Tuesday, June 13, 2006 at 10:58 pm 7 comments

I saw Doug for a little while today. It was easily one of the most good feeling times I've had in a good bit. Don't get me wrong, he's still pretty out of it. But, he's definitely awake, and you can definitely tell that Doug's in there somewhere. Today was the first I saw him with his eyes more than half-open or flickering. It was really shocking and awesome when I sat down and he opened his eyes wide and really looked at me. I also don't know what to say about how it feels when you hold out your hand and he grabs it except that it feels really, really good. He doesn't have much of a grip, but when he brings his hand up and over onto yours, you can't help but think a cautious, happy little "Yeah, this is going to be alright." Giving him the thumbs-up and having him echo it back is another little thing, a game almost, that's a lot of fun and quite silly but carries a lot of meaning with it. I also had to laugh when I gave him the 'horns—he can't quite move his fingers well enough for it yet but he was certainly trying awful hard.

Apparently Doug's on a reverse sleep cycle, he seems to start waking up late in the evening and is more active during the night than the day. He's probably also going to oscillate between active & lethargic days for a while, until he can build up some energy reserves. Despite losing a lot of weight (over 20lbs by now) he doesn't look particularly frail or weak to me, though I'm maybe more used to super skinny cyclist types. The trach was done, although since a few hours after the surgery he hasn't been on a ventilator. It's a little disconcerting if you really look at it and think about it, but it's not noticeable otherwise and isn't permanent.

Importantly, when I left today Doug was just a few minutes from being moved out of the intensive care ward. I'm waiting to hear from Dan and Jen as to where he was moved and will get that up when I know. If you already sent flowers, cards, etc, don't worry, the hospital will route them to the new room. We still need to be careful to not flood him with visitors. In addition to tiring him out, he's now going to be in a room with a few other patients that we need to be mindful of. Doug's going to be put into a step-down room, where he'll have a nurse watching over him & the other patients in the room 24 hours a day, but isn't in any immediate danger or critical care.

So, that's where things were today. Special thanks to Tony M who already dropped off a big box of cycling videos that we're going to get going for Doug once he's settled into the new room. I also got a few photos to post later in the week, but could definitely stand to have a few more!

– joe

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Entry filed under: update.

Sitting Up Communication

7 Comments Add your own

  • 1. Karen Wert  |  Wednesday, June 14, 2006 at 7:44 am

    This is a message for Dan and Jen: We’re all thinking and praying for your family, we’re getting updated through Betty and Bob, via Emily- you know, grandparent mail. Take care of yourselves and Hang in there.

    Reply
  • 2. Mary & Jay  |  Wednesday, June 14, 2006 at 10:16 am

    God really answers our prayers!!!! We are praying for Doug and the whole family. WE LOVE YOU GUYS!

    Reply
  • 3. Andy Evensen  |  Wednesday, June 14, 2006 at 2:43 pm

    we’re not visiting doug today (wednesday), if you read this spread the word.

    Reply
  • 4. Fran Szczepanski  |  Wednesday, June 14, 2006 at 4:55 pm

    Dan & Jen,

    I can’t imagine what you are going through but our prayers and good wishes are sent to you.

    Keep the faith, it seems to be working, and dwell on the all good things to come.

    Peace,

    Reply
  • 5. sara schmidt  |  Wednesday, June 14, 2006 at 7:32 pm

    glad to hear doug made it to his new room. i spoke with clara yesterday and she filled me in. let me know if you guys need anything… hope the boys are enjoying the scrub bottoms. love s

    Reply
  • 6. melissa patterson  |  Wednesday, June 14, 2006 at 7:37 pm

    Jen I just wanted to let you and your family know that you are all on our minds and in our prayers. We know everything is going to keep on moving up and forward.

    Reply
  • 7. Nita Gupta  |  Thursday, June 15, 2006 at 3:39 am

    Hooray!!!!! Each day just gets better and better! Hang in there Doug!

    Reply

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